“Disability Pride calls for celebration, hope, rebellion. We take shame, fear, and isolation, turn them around, and forge wholeness. Pride refuses to let the daily grind of ableism, discrimination, exclusion, violence, and patronizing define who we are. Pride knows our history, joyfully insists upon our present, and stretches into our future. It must not leave anyone behind—not folks in prison, not folks in nursing homes, group homes, their families’ back rooms, not folks in psych facilities, not our elders nor our youth. Pride demands and nurtures open, expansive community. Pride means listening hard and being accountable to each other. It means struggling against racism, sexism, homophobia, transphobia, and classism, just as stubbornly as we fight ableism. Pride isn’t about any single identity or community but rather about all of who we are—disabled people of color, disabled lesbians, gay men, and bisexual people, disabled women, disabled poor and working-class people, disabled immigrants, disabled transgender and transsexual people, psych survivors, people with intellectual disabilities, people with chronic illness, people with nonapparent disabilities. Pride asks uncomfortable questions and demands honest answers. It dances, sings, protests, loves, cries, fights, rolls, limps, laughs, stutters. Pride invites us to make home in our bodies and with each other.

“Pride fuels rebellion. During a time when U.S. troops are waging war in Afghanistan, millions of gallons of oil have been pouring into the Gulf of Mexico, and Arizona’s anti-immigration policies have just become law; strong, vibrant, rebellious communities are more necessary than ever. I hope we, as disabled people, will continue to take to the streets, knowing that war, environmental devastation, corporate greed, and criminalizing people of color have everything to do with disability. We need revolutionary pride, liberatory pride now!”

The photo is of Eli speaks at Disability Pride rally, wearing a black top hat with rhinestones and a rainbow boa.

I and a host of other folks decorated my trike for the parade. Here’s another pic:

The photo is of the back of Eli’s trike, above which is a banner that reads “Lame is sexy.” The trike is decorated with a big orange flower that is a whirlygig and spins in the breeze and a small disco ball hanging over the banner, among other things. Beside the trike stands Riva Lehrer, co-creator of this crip pride mobile, with her hand on her hip looking sexily into the camera. During the parade, a number of folks handed out Emi Koyama’s wonderful “Lame Is Sexy” button.

In addition to reading from Exile, I also read several poems from The Marrow’s Telling, including “How to Talk to a New Lover about Cerebral Palsy.” As folks were leaving, I got a big thank you for this poem from a woman who said she had just been having this exact conversation with her new boyfriend who has CP. I can’t think of a better compliment because it means that this poem has been of use in such a practical and possibly profound way.

During Q&A, I was asked two questions that were overwhelming in their bigness and that I am still chewing on, thinking about how I would like to answer them now. The first one was about how to get non-disabled progressive organizations to include disability in their political agendas.  I talked about three things: 1) the need to break isolation as disabled people (the material conditions of our lives are often such that many of us aren’t able to spend the time we want in communities of our own choosing, which in turn impacts the access we have to progressive activists to push them about ableism), 2) the need to talk about the ways ableism is twined at a fundamental level with other systems of oppression, and 3) the utter need for the disability rights movement to stop being a single-issue and single-identity driven movement.  There are so many more things to add to this list — strategies, ideas, philosophies, tactics.

The second question was about political and social changes  regarding social justice and disability that have happened in the last 10 years since Exile was first published.  I really fumbled this question. I talked about  queer disabled people and disabled people of color, both queer and not, finding each other, making community, and building culture. I wanted to talk about movement building work,  but all I could think of were the many barriers and walls that a lot of us have encountered in the last 10 years trying to get disability onto a broader political agenda. I’d be delighted to hear other people’s ideas about what has changed in the last decade.

Among the poems I read in the class was “East Oakland,” which is essentially a love poem that occurred at Mills my  senior year. Part of it reads:

…I want to twirl you
across the room,
my hand light
on the small
of your back, want
our bodies to catch
the rhythm, words
never ceasing.

You write:
At first
we held hands
like children
who bravely choose partners.

Then tell me: my second year
of college I took a field trip, busload
of white kids and me. We drove down
96th Avenue, right past the house
I grew up in, its square yard. Home
called ghetto for the first time.

…My tremors travel
through the arc of our walk,
hands swing into rhythm,
your palm cool and dry,
subway to 54th Street,
words never ceasing.

They taunted me weirdo, retard,
monkey, hey lezzie. Taunted you—
you don’t say the words. I spread
my body against yours, try
to imagine East Oakland, 1965….

As I read this poem 24 years after H gave me her poem reading in part, “At first/we held hands/like children/who bravely choose partners,” after hearing her story about the field trip (which also happened at Mills), after wanting to dance awkwardly and joyfully, after spreading my body against hers, most of which happened on-campus; body memory came flooding back–where we stood, the light on her face, the smell of eucalyptus, the feel of air on skin, the blue of sky. Several times as I read, I wasn’t sure I’d be able to make it through, the layers of emotion so deep, twined, literally taking of breath. What a reminder of the power, longevity, and absolute realness of  embodied memory.

It started when I read “And Yet” to the class. Several stanzas read:

North on Baldwin Road, I walk my everyday walk.
Bottom of the hill, a dog barks, boy yells, “Hey mister.
Hey mister. Hey mister.” We’ve traded names a dozen times.

Then “Hey retard. Retard. Retard.”
Schoolyard to street corner: words
slung by the pocketful.

Crip skin marked,
white skin not.

And then towards the end of the poem:

Crip skin,
white skin:
which stories
do I tell the best,
and which
rarely begin—
turn, flutter,
settle?

Several students read “crip” to mean “Crips and Bloods,” which lead to a branching conversation about multiple meanings, rather than working toward a single “correct” meaning. And someone asked about issues of appropriation, since many of the disabled people using the word crip are white. Are white disabled people misusing or stealing the word from a particular African American context? I left campus that night high on ideas, connections, what it means to listen to readers listening and using my work.

Out of this mix, I wrote the following post to the Queer Poetics class blog:

Notes on the word crip

I left the Queer Poetics class and Mills full of the poetry and politics of crip etymologies, appropriation, and simultaneity. I asked Rebekah [the teacher] if I could write a blog post to both thank all of you for our plentiful conversation and extend it.

I know where crip comes from in disability communities—the long histories of folks who have had cripple used against us. We have taken the word into our own mouths, rolled it around, shortened it, spoken it with fondness, humor, irony, recognition. And yet I can’t remember the first moment I heard the shortened, reclaimed version (nor, for that matter, the longer pain-infused original), when I adopted it as my own, started calling myself a queer crip. What are the specifics to this history and etymology? Who said it first in which spaces; how did it catch on; when was it first written down as a way of inscribing pride and resistance; how did it come to be passed from person to person over the years so that now I find myself thinking, “But didn’t crip just arise organically from disability communities, movements, cultures?” These are the questions to map out personal and communal etymologies that have very little to do with the Oxford English Dictionary, often thought of as the final authority on the history and etymology of English words.

At the same time I know close to nothing about the etymologies of Crips in gang culture and African American communities of Los Angeles. And so I went to Google, which of course can be the beginning of inquiry but rarely the end. I read several historical accounts of the founding and early years of the club, the organization, the social and activist network that became the Crips. There is a good handful of stories about where the name comes from. One story tells that it’s an acronym for “Continuous Revolution in Progress.” Another that it comes from an associative trail of names rich enough for a poem of its own—the Baby Avenues morphing to the Crib Avenues morphing to the Crips. A third that it comes from an old Asian-American woman reporting to the police that she had been mugged by young Black men who were carrying walking sticks and whom she called cripples or, in accented English, maybe crips. And there are additional versions beyond these three. Because I read these stories on the Web rather than learning them in community, I have no idea how each of them may be embedded (or not) in communal and personal etymologies rooted in specific neighborhoods, historical moments, and experiences of racist violence.

But what is clear to me is that both uses of the word crip have long community histories of their own. Neither have been appropriated, borrowed, stolen, misused. Disabled people, particularly white disabled people, who call ourselves crips aren’t twisting an African American history for our gain or pleasure. Black boys and men inside the Crips aren’t referencing a word loaded with ableism. The two uses, histories, and etymologies aren’t akin to white people wearing our hair in dreadlocks; trans people claiming their transness as a disability or birth defect in order to explain and create empathy for their embodiment; or non-Native peoples romanticizing, simplifying, practicing, and assuming ownership of Native spiritual traditions. Instead crip and Crips trace simultaneous etymologies.

What do we learn when we lay them side-by-side? What do they share in common, and where do they diverge? Who has bodily, community, political connections to both traces/words? How does gun violence and injury link the two? And finally inside a poem, what do we as readers and/or writers gain or lose by bringing all the histories and etymologies to bear on a single word or by making choices among them?

Thank you for a plentiful conversation that embraced my poems and spun off from them, leaving me with unanswered questions that demand my writerly attention.